World Fragile X Day raises awareness and highlights progress of research for Fragile X syndrome

July 22, 2022

FRAXA Research Foundation launched World Fragile X Day in 2021 with communities around the world.

World Fragile X Day celebrates families impacted by Fragile X and highlights advancements of research to find effective treatments and ultimately a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X.

As the most common inherited single gene cause of autism, Fragile X is the best key we have to solving autism. Treatments for Fragile X are also likely to help people who have Alzheimer’s or other brain disorders.

Featured Updates

Fragile X Awareness Activities Around the World

2022 Sponsors

Fragile X Association of Georgia

FRAXA Research Foundation

FRAXA Research Foundation is joining hands with communities around the world to raise Fragile X awareness while accelerating research toward effective treatments and ultimately a cure.

Join Us: Raise Fragile X Awareness

World Fragile X Day is for everyone. No event or activity is too small to help raise awareness. All are welcome to participate and join in the fun!

Ways You can Help:

  • Spread the word about World Fragile X Day on social media.
  • Organize a “Learn about Fragile X” event in schools, in your community, or through online platforms.
  • Share your story with local TV stations, radio stations, newspapers, and other media outlets.

Fragile X Research Progress

What will effective treatments or a cure for Fragile X look like? It’s a question we all ask at some point. Will it be a pill taken every day for life? Will it be combinations of medicines, tailored to each individual? Will it be a protein replacement injection once a week? Will it be a one-time gene therapy infusion that fixes every cell in the body at the same instant?

The answer is probably all of the above. Effective treatments and a cure for Fragile X isn’t a pipe dream. It’s a process, and FRAXA Research Foundation is right in the thick of it.

Fragile X Impact

We can put in quotes highlighting the impact Fragile X has on families or individuals.

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Sarah Anderson
Sarah Anderson

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George Flavius
George Flavius